Hurricane

The two hurricanes that recently stormed through our city happened to coincide with my chemo weeks.  The wind and rain of today’s was particularly violent, howling through our walls and beating off a good amount of leaves from our trees, speeding up the foliage fall.  I had a front-row view of it all, laying in bed as I stared out my rain-pelted window.  

I took a shower tonight. I hardly ever wash my hair anymore and I can’t stand how dirty hair feels.  I close my eyes when I wash my hair now but can’t escape the feeling of it stuck all over my body, long fallen strands clinging everywhere, refusing to let go.  I keep my eyes closed and try to wipe off or stick what I can onto the shower wall.  It’s a habit I’ve had for forever, one that hubs finds particularly annoying.

But not these days.  He quietly cleans the heavy webs of hair without a word.

It feels like a mess, all this. Like my own little hurricane within me; my hair slipping away under the shower head like the leaves that were pelted off the branches outside my window.  I can think of several lines of optimism and hope that I can end these thoughts with, but.  Not tonight. Tonight, to the sound of drizzling rain, my damp head of hair now clinging across my freshly changed pillowcase–I simply mourn. 

A shift in every story

I feel like writing something to express the purpose of this blog.  I keep battling between wanting to be hidden and anonymous, and wanting to be seen and heard and not alone.  Honestly, what have I got to hide?

Memorializing things in print is a scary thing.  Words have so much power.  I have—I always have had—this immense fear of saying the wrong thing; saying too much; saying honest things that are dark and ugly.  These are all the kinds of things I long to dump into this space.

But I have hope for my story and the words that will build it.  Right now, there is a lot of ugly in my mind and my world.  I’m not proud of my attitude and the many weak moments of faith that have inundated this season of my life.  But my story is not finished, and I’m so hopeful.

My story is evolving.  

I look forward to witnessing how God shifts my story towards more faith, grace and joy—regardless of which direction my circumstances turn.

Ginormoustrosity

A few days ago, I woke up gently from a pleasant dream to the sound of birds outside my window. It was still early, the sun was just starting to lighten the sky, just a hint. And as I smiled at it, my face facing the window, it suddenly hit me like an anvil straight to the stomach. I might have flinched.

I’m the girl with cancer.

I pulled the covers over my head and tried to run back into a dream. Any dream.

I’ve often used escape as a coping mechanism for when reality get a bit too hard. Books, yoga, TV, food, funny cat videos (i don’t even like cats but cat videos are the BEST). But as I approach the start of chemo, it’s getting harder to find a hiding place that’s big enough to house me and my ginormous reality.

But my God in heaven…no instrument can measure his ginormoustrosity.

You are my hiding place
You always fill my heart
With songs of deliverance
Whenever I am afraid
I will trust in You

Prayers and plans

“Mommy, when is God going to heal you completely?”

The question came out of the blue at our dining table, between mouthfuls of couscous being shoveled into his mouth. His eyes lingered a bit on his spoon before they drifted up to meet mine.

S and I were home alone on this hot, lazy Thursday afternoon, recovering from yesterday’s epically long day. Our delicious lunch was brought to us by a sweet friend down the street, which we were enjoying when S randomly popped the question.

It caught me off guard. Heal me completely…it sounded like such a mature question, a little too specific for a 5-year-old’s mind to consider. I froze for a moment before scooting my chair closer, and drew a deep breath.

“I wish I knew…but I don’t. Only God knows. But I hope it will be soon!”

“But why doesn’t he answer our prayers?”

“Well, God is always with us when we pray, and he hears all of our prayers and cares for us very much. Even if he doesn’t give us what we want or ask for, he is doing it because he has a good reason for it, and because he loves us.”

I went on to explain how even Jesus had a request in his prayers regarding the cross. He asked to be spared, but asked that not his will, but God’s, be done. And God’s will was for Jesus to die on the cross. I had S think about how it must’ve made God feel to see his son weep like that, and have to watch him endure such suffering. Even though neither of them wanted this, they knew there was no other way to rescue creation from sin.

Good—great good—coming out of pain.

S’s eyes were locked into mine through the whole narrative. I could sense from his eyes, he got it. I then circled it back to me and our family, and how even if God doesn’t answer our prayers to make me all better, he still has a magnificent plan for us because we are his children, and there is no need to worry.

“In fact, none of us will be 100% healed until we get to heaven!”

“Yeah!,” he said, “from sin!”

“Exactly! Our sinful hearts, and our broken bodies.”

We had such an amazing little chat, going so far as to even discussing the trinity (“is it like our family? How we are three—you, me and Daddy—but we are one, in the same family?”) and ending on the sweet truth of how secure we are as chosen children of God.

My heart was bursting. There were two emotions going on: one of great joy and gratitude, seeing this 5-year-old siting in front of me that I get the privilege to call mine, whose young mind so clearly grasps the concept of the broken world we live in and our need for a savior. The other, of heavy sorrow, wondering if God led me into this conversation to prepare him for what lies ahead. Will he remember back to these words one day when I’m gone?

Again

The phone call came around 11 this morning. I was in my room, sitting by the window, scribbling a grocery list on the back of an envelope just as I answered my phone.  The moment his voice greeted me, I knew.

I knew. I knew. I knew.

And my thoughts immediately went to, I don’t want to be alone right now. Crap crap crap crap crap what do I do, I’m all alone and he’s going to tell me that it’s cancer.

I wonder what it’s like to pick up the phone and have to delivery that kind of news. I wonder if doctors do a little pep talk to themselves. I wonder if they imagine what their patient is doing at that very moment. I wonder if they just dissociate and mentally float off to a happier place.

Maybe they just think about what’s for dinner tonight. Not phased one bit.

Five seconds of small talk and he gets straight to it. They did find cancer. I’m sorry, I know it’s not what we were hoping for or expecting.

His tone is so kind. I try my hardest to be present in the moment and our conversation. I don’t want to let any detail slip past me. But I could feel myself drifting–like an astronaut floating slo-mo in space–and my mind went cloudy gray. I catch a few details:

Grade 3. Highly unusual characteristics. Colleagues and I are totally surprised.

I stare down at my grocery list I was making before I got the call.
carrots.
onions.
cheese.

Nodding and repeating “uh huh, uh huh” until I can’t anymore and the dam breaks loose.

It breaks when he asks if I want him to call J to relay the news. Um, no…well, uh…I don’t know…actually, okay, yes…can you please call him and let him know?

I’m crying and his discomfort is palpable in the silence on the other end. I try to hold it in. He’s a nice man, I don’t want to mess up his morning with my Ugly Sob.

I’m angry.  They were so sure it wasn’t cancer!  For the longest time, they didn’t even want to biopsy it.  Even during the biopsy they assured me it was nothing to worry about.

I thank him and hang up the phone.

For a moment, everything is frozen, quiet. And then it comes: waves of heavy, from-the-gut, deep ugly sobs. I grab a nearby pillow and heave-cry into it. I want to not be alone, I want to call someone and just cry—and I don’t know who. I imagine J getting the news right now, this very moment, and the heave-cries get louder. I don’t want to put him through this again. I want more than anything not to have to put him through this again.

The pup inches his way closer to me and cocks his head as his eyes lock into mine. I grab him and rock back and forth with him in my arms, sobbing in my armchair, by the bed that I laid in like a vegetable for weeks as I recovered from my TBI.

Why is this happening? I need someone or something to blame. My doctors? Me? Too much stress? Too much sugar? God?

I know that I’m not right in blaming God. I know this. But my mind automatically goes there. Why, God? This is so unfair! What did I do that you think this is what should happen to me and my family, again? How are we going to survive this? We’ve all had to endure too much…this is too much.

Too much.

Too much.

On being a blob

When the pain subsided, I couldn’t tell if it had been real. I’ve been laying here, blinking my eyes in the dark of my bed for several days now, calculating the feasibility of it all having been a dream.

The last memory I have of reality, before it all went blank, is of coasting on my longboard. I remember panicking as it began to pick up speed on an unexpected downhill slope. I remember glancing over at my son, riding his bike to my right. I remember the wind on my face blowing harder as I picked up speed. I remember thinking that I needed to get off this thing somehow. I might have tried to step off, though I’m not sure. 

Everything after that is blank. I remember nothing about the ER that night, all the different places they rushed me to for scans and checks and cleaning up / draining the blood. 

I’ve been home for three weeks now, lying in bed with my broken body. Prescription bottles lay strewn across the dresser, my daily sustenance. The pink bedpan J ordered from Amazon that he used as a cowboy hat just before I had to use it for the first time. A walker in the corner, the kind that clutters nursing home dining halls. The pain has a mind of its own, like a swarm of bees set loose in a dark honey cave. (What’s a honey cave?) It shifts from my head, to my back, to my leg, to my jaw, to my ear. Sometimes my lower stomach. I use the walker to help me to the bathroom and have made two trips out of the house, not counting hospital trips, with its help.  I’ve never appreciated fresh outside air as I now do. I thought by now my memory would start coming back but sadly, it’s fading even more rapidly now.

So I write. It’s hard to write with a broken brain.

J’s been telling me bits to fill in the holes my brain is unable to recall. I guess the hospital stay was pretty terrible. I broke some bones in my skull and my inner ear and suffered a brain hemorrhage that required scans and monitoring during my admission. I had cerebral fluid dripping out of my nose. My clothes and coat had blood stains on them. I was in a lot of pain all the time so I was pumped up with meds and flung swear words around like a sailor (yikes).  I didn’t know any of this before being discharged from the hospital. I don’t even recall being discharged. 

It’s all been so hard.

My short term memory comes and goes, and my sense of smell and taste are gone. My hearing on the right (where the broken bones are healing) is diminished. The pain pings from my head to my hip to my back to the next like a never-ending pin ball machine. I have incredible, sanity-breaking vertigo every time I move while laying down or tilting my head down. I can’t open my mouth wider than 2cm.  My face is swollen and lop-sided. I feel like I have marbles in my armpits and my breasts hurt in a weird way, which of course has been sending me into bouts of panic. 

Thankfully, I’m recovering.  I am in a much better place than I was 3-4 weeks ago. At least, that’s what they say. It’s weird, because while I know this as fact, it is only because of what my husband and doctors and modern medicine tell me; I have no experiential understanding of this truth. I have no independent recollection of the horrors and pain I suffered through that first week in the hospital.

I am continuously being told that I am doing much better than I was…but I don’t feel like I am. Every day, especially in the evening and night, I suffer. The dozens of meds I’ve taken since my discharge have done little good in easing my pain and vertigo. I’ve been trying not to tell my family about the extent of it all because worry does no one any good. I’m doing my best to just breathe and relax but it is impossible. I am filled with thoughts and worry. And guilt. 

I felt like this during my recovery from my cancer procedures.  Like life was moving and busy and leaving me behind. Friends, family, politics, days, seasons.  Everything was moving and shifting and here I was laying still, in bed, every day, watching the light of the sun grow in the morning and from the very spot watching it fade at night. I spent nearly half that year in bed, wondering how I became just a blob that takes up space and sucks up air that others need to take care of. 

And here I am, morphed against my will into the same blob I fought so hard to shed, weighed down by this unrelenting guilt of being a sucker fish to the people I love most.

When will I stop being a liability and burden to others and able to get to a place where I can actually offer something to the world? To the people I love? 

When will I stop being at war with my body and mind and be at peace with the circumstances God has allowed into my life? 

When will I ever feel close to normal again? 

Will I ever be the mom my son needs, the wife my husband deserves?

It’s all been so hard.

Like dried glue

I’m sitting on my couch with my jacket on. I’ve been here 30 minutes, which is how long ago I should have stepped out the front door. 

I have a follow-up at the cancer center for more scans to see if a few masses have changed/grown. And despite the fact that I have five different places to stop by before picking S up from the bus stop, my bum remains glued to this couch. Shivering, because my jacket is flimsy and I turned the heat off 30 minutes ago. 

I hate how paralyzingly of a force cancer continues to be in my life. 

What I deserve

S: Do I deserve my bike, Mommy?

Me: Well, actually, none of us really deserve anything good.

S: Why?

Me: Because we are all sinners who can do no good apart from God. 

S: Well, do you deserve one thing, Mommy. 

M: What’s that?

S: A special kind of love from me. (Hug)

Sabbath somewhere in SE Asia

It’s rare that I get a Sunday morning to myself when I’m on mission here in SE Asia. It’s usually a travel day for me, spent mostly on back country roads or traffic jams getting from one hotel to another in the next city.

Good morning Vietnam

But today, I had no travel plans, which meant a rare opportunity to hop in a cab after breakfast to join a local expat church for Sunday worship. I was pretty stoked. It’s such a neat thing to worship with strangers who are brothers and sisters in Christ on the other side of the world—this realization that, no matter where I am in the world, I can connect on a significant level with a fellow Christian, never gets old.

The worship team started up and I was instantly transported back to high school. The song was an oldie, and they played it just like my old youth group praise team did back in the 90s: clunky and spunky.

The gathering was mostly of young-ish students and other ministry-related workers, serving the Lord in varied capacities throughout the city. From what I could gather, the pastor was a missionary here in the city with legitimate pastoral credentials. But his sermon lacked clarity and depth, with hardly a thread of scripture woven into it. I struggled to take notes as he led us from one tangent to the next.

I’m not writing about this just to be critical of the church or experience. What I’ll remember most of this experience—which is why I’m memorializing it here—is how sad I was as I left the church. A church filled with so many workers but without a solid preaching of the gospel. It felt dry and I wonder if I might be right.

I heard a sermon the other day about a church somewhere in some remote village that sits far away from my reality.  The pastor of this tiny village church had six sermons he rotated through every Sunday. There were only six, because that’s all the bible knowledge he had. Can you imagine? Your spiritual leader, with no bible to reference and only six passages of the bible committed to memory from which to rely on.

We Americans are spoiled. It’s something we forget all the time.

True colors

(singing along to “True Colors”)

Me: I see your true colors, S.

S: I don’t have any colors!

Me: Yes you do! Everyone does. 

S: Does Cubby? His color is brown!

Me: Your true colors aren’t the colors you are on the outside–they’re all the colors on your inside, in your heart, that make you beautiful. 

S: Cubby’s heart is blue!

Me: Why?

S: Because he wants a pickle and we don’t have any.