Suffering Well – Fear

What emotions did Jesus experience in Gethsemane?

Fear is the first word my mind generates. Panic, distress, fear. Perhaps it’s the influence of that one iconic painting of Jesus in nighttime Gethsemane, his frightened eyes and furrowed brow turned heavenward from his glowing face. I guess it’s kind of tricky to capture the face of anguish without fear, without distorting it into something unpleasant.

pc: paintingvalley.com

I never questioned if fear was an accurate assessment of his experience that night, until this morning.

Me: What were the emotions Jesus felt at Gethsemane?
Him: Dread and fear, I’d say
Me: Isn’t fear a sin? Like, one of those gray-area ones that isn’t a specific commandment but more like an admonition?
Him: (pause)
Me: Like, can Christ in his perfection actually fear?
Him: Think you’re right about fear being a sin…so, maybe more like extreme anguish/dread.

I’ve been studying up on the theology of suffering. Truly, if there’s anything I want to show for these past several years of cancer, depression and despair, I want it to be that I learned to suffer well. Still not there yet, but by God’s grace and patience I’m inching closer with each day, I think.

Jesus is the ultimate case study on the art (?) of suffering well.

And as we approach Good Friday and I meditate on all that Jesus may have experienced on that night, I’m struck by the fact that he had no fear. I’m realizing that those blood-infused sweat droplets were not indicative of off-the-chart levels of fear and panic, but deep, gut-wrenching anguish.

anguish /ăng′gwĭsh/

noun

  1. Agonizing physical or mental pain; torment. 
  2. Extreme pain, either of body or mind; excruciating distress.

Jesus agonized in torment within his body and soul from the weight of what lay ahead. Physical pain and torment, yes. But also the weight of the world’s sin – past, present and future – all to bear on his shoulders, alone, without a single soul’s support and especially without his heavenly Father’s presence, poured excruciating distress over his entire being. I can’t begin to fathom what it may have been like for Jesus, in that garden that night.

But I know one thing: he had no fear.

No fear of the cross. No fear of rejection. No fear of shame. No fear of pain and torture. No fear of armies, high priests, angry mobs, hateful insults, evil authorities. No fear of any man on the planet. No fear of walking this path alone. No fear of Satan. No fear of death.

And no fear of the Father turning his face away.

Why, and how?

Because he knew how it would end. He knew that he already had the victory. He knew this would be a “light and momentary affliction” that would prepare for him an eternal weight of glory beyond all comparison. He knew the incredible redemption his death and resurrection would bring to the world. He knew the joy of obedience to his Father’s will, and the steadfastness of his Father’s immutable promises.

If Christ had no fear, how much more should I not? In the face of these light and momentary afflictions – truly 1000% lighter and more momentary than his – I remember that, unlike Christ, I am not alone. I have a helper and a protector, a provider and a comforter. A good, good shepherd.

Be strong and courageous. Do not fear or be in dread of them,
for it is the Lord your God who goes with you.
He will not leave you or forsake you.                       Deuteronomy 31:6

It is the Lord who goes before you.
He will be with you; he will not leave you or forsake you.
Do not fear or be dismayed.                                        Deuteronomy 31:8

Even though I walk through the valley of the shadow of death,
I will fear no evil, for you, Lord, are with me;
Your rod and staff, they comfort me.                       Psalm 23:4

I will say to the Lord, “My refuge and my fortress,
my God, in whom I trust.”
For he will deliver you from the snare of the fowler
and from the deadly pestilence.
He will cover you with his pinions,
And under his wings you will find refuge:
his faithfulness is a shield and buckler.
You will not fear the terror of the night,
nor the arrow that flies by day,
nor the pestilence that stalks in darkness,
nor the destruction that wastes at noonday.        Psalm 91:2-6

For he will command his angels concerning you
to guard you in all your ways.
On their hands they will bear you up,
lest you strike your foot against a stone.                Psalm 91:11-12

Because he holds fast to me in love, I will deliver him;
I will protect him, because he knows my name.
When he calls to me, I will answer him;
I will be with him in trouble;
I will rescue him and honor him.                                Psalm 91:14-15

Let us then with confidence draw near to the throne of grace,
that we may receive mercy and find grace to help
in time of need.                                                                Hebrews 4:16

These are the things I remember

We decided on Monday that we would live out our two days of oblivion to the fullest. No fears or worries, no what-ifs, no planning. We would laugh and enjoy the hours as if nothing in our world had changed, because aside from a bandage and some bruises, nothing had changed. For now.

We binged the Olympics and Korean dramas. We stayed up and slept in. We let the kid go wild with friends and video games. I’m not sure I ever brushed my teeth.

I woke up on Wednesday fully alert, aware that our oblivion-fest was over. The clock was reset, and now we would wait.

We went about our morning routine, but it felt different. I threw on some clothes and put my hair up in a bun. J and I grabbed our morning drinks and we went out the door for our daily morning walk, leaving S sprawled out on the couch with his blanket and PBS cartoons. We made it past our driveway in silence. Our conversation was awkward, lacking its familiar flow that matched the cadence of our steps.

“It’s such a perfect morning.”
“Yeah, it already feels a bit like fall.”
“I mean, it really could be nothing.”
“Totally. Even Dr. H said it might just be scar tissue.”
“Yeah.”

Permeating our awkward chit-chat was a weighty understanding that our world might change today. And it did. At 11:37AM, we received news that the cancer has returned.

Fear can have so much power over our minds. It deceives us into believing lies. I know truth extinguishes fear, and truth is what I choose to cling to in the darkness.

These are the things I remember:

  • God is with my family – he will help us and strengthen us; he will uphold us with his right hand. (Isaiah 41:10)
  • God will never leave us or forsake us. (Deut.31:6)
  • God is our refuge and strength; our very present help in trouble. (Psalm 46:1-3)
  • His peace will guard our hearts and minds in Christ Jesus as we present our requests to him in prayer and thanksgiving. (Phil 4:6-7)
  • God will give us wisdom when we ask him in faith. (James 1:5-8)
  • He tests our faith through trials to bless us with steadfastness. (James 1:2-4)
  • God is working all things for our good and his glory. (Rom.8:28)

Cancer is a mighty beast. But God is mightier. God is love; he is unchanging; he is true. And God has everything moving according to his good and perfect plan.

Dreams

March was a big month for me. 

My job contract was coming to an end, and though bittersweet, I was mostly excited. It had been a grueling two years and I yearned for rest.

Hubs and I sat down together in early March to discuss my plan for the remainder of the year. 

  • April: rest! 
  • Summer: quality family time. invest in developing my art and spend more time experimenting in the kitchen 
  • Fall: open an etsy shop and see if it’s something worth investing in long-term
  • Next spring: possibly prepare for bar exam

Ah. March was a month of dreams. A field of dreams.

Six months later, fall blows brown into our yard and here we are, in a house ruled by cancer. 

It came out of left field, blind-sighting our little family of three as we ran around knee-deep in the wild flowers that covered our field of dreams. 

I mourn the life and dreams we had to leave behind to fight cancer full-time.  All the time off J’s work for the never-ending appointments; all the back-to-school events my body wouldn’t allow me to attend; all the medication and supplements, face masks, hand sanitizer, medical bills strewn around the house; all the hours spent in bed staring at my ceiling, unable to move; all the strands of my long, dark hair on my pillow, carpet, clothes, bathroom tile that just won’t quit. 

All of it seems like one enormous waste. 

Several months ago, when the doorframes  and foundation of our lives started crumbling around us, I holed myself in the house and spent a chunk of each day crying. On one of those days, I sat in my room with my knees hugged tight to my chest as a song I’d never heard gently tiptoed in through my speakers.

The hurt that broke your heart
And left you trembling in the dark
Feeling lost and alone
Will tell you hope’s a lie
But what if every tear you cry
Will seed the ground where joy will grow

Nothing is wasted
Nothing is wasted
In the hands of our Redeemer
Nothing is wasted

It’s from the deepest wounds
That beauty finds a place to bloom
And you will see before the end
That every broken piece is
Gathered in the heart of Jesus
And what’s lost will be found again

Nothing is wasted
Nothing is wasted
In the hands of our Redeemer
Nothing is wasted

When hope is more than you can bear
And it’s too hard to believe it could be true
And your strength fails you halfway there
You can lean on me and I’ll believe for you
And in time you will believe it too

Nothing is wasted
Nothing is wasted
Sometimes we are waiting
In sorrow we have tasted
But joy will replace it

Nothing is wasted
In the hands of our Redeemer
Nothing is wasted*

These beautifully woven words moved me deeply. My trickle of sadness turned into a rushing current of sorrow subterranean twisted with hope effervescent.  A flood of tears.  I remember. I clung to the words I did not fully understand but had faith to be true and I accepted its warm embrace. That is faith, isn’t it? Gripping white-knuckled the truth of what we hope for, even when we do not understand.

As I sit here now surveying the rubble around me, I remember this truth, and hope returns.

Nothing is wasted. 

—–

*Jason Gray, Nothing is Wasted.

Hurricane

The two hurricanes that recently stormed through our city happened to coincide with my chemo weeks.  The wind and rain of today’s was particularly violent, howling through our walls and beating off a good amount of leaves from our trees, speeding up the foliage fall.  I had a front-row view of it all, laying in bed as I stared out my rain-pelted window.  

I took a shower tonight. I hardly ever wash my hair anymore and I can’t stand how dirty hair feels.  I close my eyes when I wash my hair now but can’t escape the feeling of it stuck all over my body, long fallen strands clinging everywhere, refusing to let go.  I keep my eyes closed and try to wipe off or stick what I can onto the shower wall.  It’s a habit I’ve had for forever, one that hubs finds particularly annoying.

But not these days.  He quietly cleans the heavy webs of hair without a word.

It feels like a mess, all this. Like my own little hurricane within me; my hair slipping away under the shower head like the leaves that were pelted off the branches outside my window.  I can think of several lines of optimism and hope that I can end these thoughts with, but.  Not tonight. Tonight, to the sound of drizzling rain, my damp head of hair now clinging across my freshly changed pillowcase–I simply mourn. 

On being a blob

When the pain subsided, I couldn’t tell if it had been real. I’ve been laying here, blinking my eyes in the dark of my bed for several days now, calculating the feasibility of it all having been a dream.

The last memory I have of reality, before it all went blank, is of coasting on my longboard. I remember panicking as it began to pick up speed on an unexpected downhill slope. I remember glancing over at my son, riding his bike to my right. I remember the wind on my face blowing harder as I picked up speed. I remember thinking that I needed to get off this thing somehow. I might have tried to step off, though I’m not sure. 

Everything after that is blank. I remember nothing about the ER that night, all the different places they rushed me to for scans and checks and cleaning up / draining the blood. 

I’ve been home for three weeks now, lying in bed with my broken body. Prescription bottles lay strewn across the dresser, my daily sustenance. The pink bedpan J ordered from Amazon that he used as a cowboy hat just before I had to use it for the first time. A walker in the corner, the kind that clutters nursing home dining halls. The pain has a mind of its own, like a swarm of bees set loose in a dark honey cave. (What’s a honey cave?) It shifts from my head, to my back, to my leg, to my jaw, to my ear. Sometimes my lower stomach. I use the walker to help me to the bathroom and have made two trips out of the house, not counting hospital trips, with its help.  I’ve never appreciated fresh outside air as I now do. I thought by now my memory would start coming back but sadly, it’s fading even more rapidly now.

So I write. It’s hard to write with a broken brain.

J’s been telling me bits to fill in the holes my brain is unable to recall. I guess the hospital stay was pretty terrible. I broke some bones in my skull and my inner ear and suffered a brain hemorrhage that required scans and monitoring during my admission. I had cerebral fluid dripping out of my nose. My clothes and coat had blood stains on them. I was in a lot of pain all the time so I was pumped up with meds and flung swear words around like a sailor (yikes).  I didn’t know any of this before being discharged from the hospital. I don’t even recall being discharged. 

It’s all been so hard.

My short term memory comes and goes, and my sense of smell and taste are gone. My hearing on the right (where the broken bones are healing) is diminished. The pain pings from my head to my hip to my back to the next like a never-ending pin ball machine. I have incredible, sanity-breaking vertigo every time I move while laying down or tilting my head down. I can’t open my mouth wider than 2cm.  My face is swollen and lop-sided. I feel like I have marbles in my armpits and my breasts hurt in a weird way, which of course has been sending me into bouts of panic. 

Thankfully, I’m recovering.  I am in a much better place than I was 3-4 weeks ago. At least, that’s what they say. It’s weird, because while I know this as fact, it is only because of what my husband and doctors and modern medicine tell me; I have no experiential understanding of this truth. I have no independent recollection of the horrors and pain I suffered through that first week in the hospital.

I am continuously being told that I am doing much better than I was…but I don’t feel like I am. Every day, especially in the evening and night, I suffer. The dozens of meds I’ve taken since my discharge have done little good in easing my pain and vertigo. I’ve been trying not to tell my family about the extent of it all because worry does no one any good. I’m doing my best to just breathe and relax but it is impossible. I am filled with thoughts and worry. And guilt. 

I felt like this during my recovery from my cancer procedures.  Like life was moving and busy and leaving me behind. Friends, family, politics, days, seasons.  Everything was moving and shifting and here I was laying still, in bed, every day, watching the light of the sun grow in the morning and from the very spot watching it fade at night. I spent nearly half that year in bed, wondering how I became just a blob that takes up space and sucks up air that others need to take care of. 

And here I am, morphed against my will into the same blob I fought so hard to shed, weighed down by this unrelenting guilt of being a sucker fish to the people I love most.

When will I stop being a liability and burden to others and able to get to a place where I can actually offer something to the world? To the people I love? 

When will I stop being at war with my body and mind and be at peace with the circumstances God has allowed into my life? 

When will I ever feel close to normal again? 

Will I ever be the mom my son needs, the wife my husband deserves?

It’s all been so hard.

Like dried glue

I’m sitting on my couch with my jacket on. I’ve been here 30 minutes, which is how long ago I should have stepped out the front door. 

I have a follow-up at the cancer center for more scans to see if a few masses have changed/grown. And despite the fact that I have five different places to stop by before picking S up from the bus stop, my bum remains glued to this couch. Shivering, because my jacket is flimsy and I turned the heat off 30 minutes ago. 

I hate how paralyzingly of a force cancer continues to be in my life.